Information on your condition

A doctor and a nurse talkingFor information on your condition, see the conditions, tests and treatments A-Z directory.

If you need further information, we recommend the NHS Choices website. It is specifically aimed at patients and dedicated to giving help and advice, backed up with medical expertise.

In addition, the websites of the British Heart Foundation, British Lung Foundation and Cystic Fibrosis Trust, all of which support our work at the Trust, include information on specific conditions, treatments and disease management.

If you have been told you will be undergoing laboratory tests, for instance a blood test, in hospital and you would like to know more about what it involves and what it could reveal, then Lab Tests Online UK could help you.

Useful links

National Library for Health - brings together information and links for the medical profession and patients. Search the condition or treatment you want to know more about. Publications from a variety of sources, including NHS Direct and the British Medical Journal.

Lab Tests Online - lists over 200 different tests that patients routinely undergo, explains the purpose of the test, what it involves and further information.  This site is the result of a collaboration the Association for Clinical Biochemistry and the American Association for Clinical Chemistry. 

British Heart Foundation - a charity dedicated to researching and preventing heart conditions and providing care and support for those living with them.  Their website includes a section on living with heart conditions that has information on the conditions, treatment, recovery and support for patients.

British Lung Foundation - a charity involved in research into lung disease, preventative work and support and care for people living with lung conditions. Their website includes resources for finding out more about conditions, diagnosis and treatment, living with lung disease and children.

Cystic Fibrosis Trust - a charity working to improve the lives of people with the condition, raise its profile and fund research into a cure. Their website includes information about the disease, living with it, its symptoms and treatments.

Pulmonary Hypertension Association UK - the Pulmonary Hypertension Association (PHA UK) is the only charity in the UK especially for people with pulmonary hypertension (PH). Their website includes information on PH, treatment and management of PH and support for family and friends.

Patient information leaflets

Below are some helpful guides and information leaflets put together by experts in the Trust about the conditions, tests and treatments we look after. If you can't find the leaflet you are looking for, check out our full selection of patient information leaflets

Patient information leaflets

24-hour blood pressure monitor test - Harefield Hospital (349KB)
This leaflet explains why you might need a 24-hour blood pressure monitor test, and what happens during and after the test at Harefield Hospital.

Adult congenital heart disease day case assessment unit (114KB)
Royal Brompton Hospital: explains the tests you may undergo if you have been referred to the unit. 

Adult congenital heart disease unit (116KB)
Royal Brompton Hospital: details of the unit and the procedures and treatments offered. 

After your angiogram or angioplasty - Royal Brompton Hospital (338KB)
Advice to help you recover as quickly as possible after your angiogram or angioplasty.

After your angiogram or angioplasty - Harefield Hospital (1.03MB)
Advice to help you recover as quickly as possible after your angiogram or angioplasty.

After your heart operation - Royal Brompton Hospital (2.17MB)
This booklet gives you general information about going home after your heart operation.

After your primary angioplasty - Harefield Hospital (446KB)
This leaflet gives you general information to support your recovery after your primary angioplasty.

Cardiac catheterisation (for children) (1.33MB)
This leaflet gives parents and carers general information about cardiac catheterisation for their children.

Cardiomyopathy day case clinic (532KB)
This leaflet gives you general information about your appointment in the cardiomyopathy day case clinic.

Clinic for inherited cardiovascular conditions (179KB)
This leaflet gives you information about the clinic for inherited cardiovascular conditions at Royal Brompton Hospital.

DVLA regulations for patients with ICDs (369KB)
This leaflet explains the current driving regulations for patients with ICDs, as agreed between the DVLA and its cardiology advisory panel.

Endocarditis (103KB)
A guide to endocarditis and how you can reduce your risk of developing it.

Exercise tolerance (stress) test - Harefield Hospital (365KB)
This leaflet gives information on an Exercise Tolerance (stress) test.

Fitness for surgery clinic - Harefield Hospital (504KB)
This leaflet gives you general information about the fitness for surgery clinic. The aim of the clinic is to carry out a number of tests to make sure you are fit enough to have cardiac surgery.

Having a cardiac CT scan (497KB)
This leaflet gives general information about having a cardiac CT scan.

Having a CT coronary angiography scan (497KB)
This leaflet provides general information about your CT coronary angiography scan.

Having a CT scan (321KB)
This leaflet gives you general information about your CT scan.

Inherited cardiovascular conditions day case clinic (532KB)
This leaflet gives you information about the inherited cardiovascular conditions service.

Living with your ICD - Royal Brompton Hospital (464KB)
This leaflet is a general guide on living with and adapting to life with your implantable cardioverter defibrillator (ICD).

Living with your pacemaker - Royal Brompton Hospital (460KB)
This leaflet is a general guide on living with and adapting to life with a pacemaker.

Managing your pain after cardiac device insertion (334KB)
This leaflet is a general guide to managing your pain after cardiac device insertion.

Pacing clinic - Harefield Hospital (380KB)
This leaflet provides information about the Harefield Hospital pacing clinic, a follow-up clinic for patients who have had a pacemaker fitted.

Paediatric cardiomyopathy clinic - Royal Brompton Hospital (455KB)
This leaflet is about your visit to the cardiomyopathy clinic at Royal Brompton Hospital.

Rapid access heart function clinic - Harefield Hospital (169KB)
This information sheet provides details about your appointment at the rapid access heart function clinic.

Seven-day ECG (Holter monitoring) - Harefield Hospital (373KB)
Information about a seven-day ECG (Holter monitoring).

Transition: information for young people growing up with congenital heart disease (103KB)
We have written this leaflet to give you information on a process called "transition". This is the time during which you move from the paediatric (children's) cardiology service, which has cared for you since you were diagnosed with a heart condition, to the adult service.

Tilt test - Harefield Hospital (509KB)
This leaflet explains why you might need a Tilt test, and what happens during and after the test at Harefield Hospital.

Vasovagal syncope (common faints) (343KB)
This leaflet gives you general information on vasovagal syncope (common faints).

What is pulmonary hypertension? - Royal Brompton Hospital (637KB)
This leaflet provides you with information about pulmonary hypertension and what to expect during your time in hospital.

Your cardiac catheterisation: information for young people and their parents (114KB)
This booklet has been written to give you, and your parents, information about your visit to hospital for a diagnostic cardiac catheterisation.

Your cardiovascular magnetic resonance (CMR) scan (351KB)
This leaflet provides information about your cardiovascular magnetic resonance (CMR) scan.

Your coronary angiogram - Harefield Hospital (273KB)
This leaflet gives you general information about your coronary angiogram.

Your coronary angiogram - Royal Brompton Hospital (520KB)
This leaflet gives you general information about your coronary angiogram.

Your coronary angioplasty - Harefield Hospital (275KB)
This leaflet gives you general information on your coronary angioplasty.

Your coronary angioplasty - Royal Brompton Hospital (521KB)
This leaflet gives you general information on your coronary angioplasty.

Your nuclear medicine myocardial perfusion scan - Harefield Hospital (395KB)
This leaflet gives you information on your nuclear medicine myocardial perfusion scan. This scan shows how well your heart muscle is being supplied with blood.

Your nuclear medicine myocardial perfusion scan - Royal Brompton Hospital (467KB)
This leaflet gives you information on your nuclear medicine myocardial perfusion scan. This scan shows how well your heart muscle is being supplied with blood.

Your stress echocardiogram - Royal Brompton Hospital (441KB)
This leaflet gives you general information on your stress echocardiogram (echo). This test helps your doctor understand how your heart copes when it is made to work harder, such as during exercise.

Your stay in the day case unit (34KB)
Harefield Hospital: practical information for patients coming into the day case unit. 

Your stay in the medical care unit (34KB)
Harefield Hospital: practical details for people coming into the unit.

After your lung surgery checklist (228KB)
This checklist helps you return home safely after surgery. You can tick each box to show you are ready to go home, and write down information you need to remember.

After your lung surgery (281KB)
This booklet gives information about going home after lung surgery. The booklet has an accompanying checklist to help you return home safely.

Before your lung surgery (2.41MB)
This leaflet gives you information on your stay in hospital for lung surgery.

Bronchiectasis (349KB)
Information for patients.

Chronic cough clinic (580KB)
This leaflet gives you general information on the chronic cough clinic held at Royal Brompton and Harefield hospitals.

Extracorporeal membrane oxygen (ECMO) for severe lung failure (1.29MB)
This leaflet gives general information about extracorporeal membrane oxygenation (ECMO) for severe lung failure to relatives and friends of patients who may benefit from this treatment.

Getting patients home sooner after lung treatment (PDF, 259KB)
We are introducing a morning discharge procedure for patients who have had treatment for their lung condition.

Having CT guided needle lung biopsy (596KB)
This leaflet gives general information about a CT guided needle lung biopsy.

Lung tumour ablation (490KB)
This leaflet gives you general information about your lung tumour ablation treatment.

Managing your chest drain at home (373KB)
This leaflet gives you, your district nurse and GP (family doctor) information on how to manage your chest drain at home.

Mycophenolate monitoring - Royal Brompton Hospital (660KB)
This leaflet provides a mycophenolate monitoring and dosage record for respiratory patients with interstitial lung disease at Royal Brompton Hospital.

Occupational inhalation testing (32KB)
Royal Brompton Hospital - explains why we give the test and what it involves.

Systematic Assessment for Refractory Asthma (580KB)
This leaflet gives you general information about your admission for systematic assessment of refractory asthma (SARA).

Taking opioids to treat breathlessness (404KB)
This leaflet gives you general information about taking opioids for breathlessness.

The adult asthma psychology service - Royal Brompton Hospital (168KB)
This leaflet provides information about the adult asthma psychology service which helps patients cope with the emotional effects of having severe asthma or other upper airway conditions.

Toolkit for managing breathlessness (630KB)
This leaflet explains some techniques to help with breathlessness.

What is cryotherapy? (490KB)
This leaflet gives you general information on cryotherapy, for example how it is performed, what happens on the day, and if there are any side effects.

What is pulmonary hypertension? - Royal Brompton Hospital (637KB)
This leaflet provides you with information about pulmonary hypertension and what to expect during your time in hospital.

Your child's difficult asthma assessment (2.46MB)
This leaflet gives you general information about your child's difficult asthma assessment.

Your continuous laryngoscopy during exercise (CLE) test (606KB)
This leaflet gives you general information about a continuous laryngoscopy during exercise (CLE) test.

Your lung cancer multidisciplinary team (MDT) - Harefield Hospital (441KB)
This leaflet gives you information about your lung cancer multidisciplinary team (MDT) and your key worker.

Your lung function tests - Royal Brompton Hospital (353KB)
This booklet gives general information on some of the lung function tests available to see how well your lungs work.

Your occupational asthma (163KB)
Finding out that you have occupational asthma can make you feel worried about your health and ability to continue working. We hope that this leaflet will help to address some of your concerns.

Your oesophageal tests (737KB)
This leaflet gives you information about your oesophageal tests.

Your pectus correction surgery (139KB)
Information for people due to have pectus anomoly correction surgery.

Your pulmonary rehabilitation programme - Harefield Hospital (200KB)
What happens in the pulmonary rehabilitation programme - what you'll learn, how it can help you, and where to find a class.

Your pulmonary rehabilitation programme - Royal Brompton Hospital (416KB)
What happens in the pulmonary rehabilitation programme - what you'll learn, how it can help you, and where to find a class.

Your sleep study (30KB)
Royal Brompton Hospital - why we do sleep studies and what they involve.

About the children's cardiac nurse specialist team (332KB)
This leaflet gives you general information about our clinical nurse specialists in children's cardiac care.

Antenatal advice for mothers about breastfeeding (37KB)
Royal Brompton Hospital - information on the benefits of breastfeeding for pregnant women.

Cardiac catheterisation (for children) (1.33MB)
This leaflet gives parents and carers general information about cardiac catheterisation for their children.

Checking your child's health before coming into hospital for a heart operation (31KB)
Advice for parents.

Children on long-term assisted ventilation at home (175KB)
A general guide to help carers and healthcare teams work together to plan the space and equipment to use at home.

Clinic for inherited cardiovascular conditions (179KB)
This leaflet gives you information about the clinic for inherited cardiovascular conditions at Royal Brompton Hospital.

Coming to hospital to explore your child's breathing problems (84KB)
Royal Brompton Hospital - what to expect when your child comes in for tests.

Fetal cardiology service (21KB)
Royal Brompton Hospital - details of our specialist team that cares for babies with heart conditions. 

Innocent heart murmur (370KB)
This leaflet gives information about innocent heart murmurs.

Paediatric cardiomyopathy clinic - Royal Brompton Hospital (455KB)
This leaflet is about your visit to the cardiomyopathy clinic at Royal Brompton Hospital.

Paediatric critical care - information for parents and carers (506KB)
This leaflet provides information for parents and carers about paediatric critical care, for example, the different hospital teams you will meet.

Transition: information for young people growing up with congenital heart disease (103KB)
We have written this leaflet to give you information on a process called "transition". This is the time during which you move from the paediatric (children's) cardiology service, which has cared for you since you were diagnosed with a heart condition, to the adult service.

When your child goes home after heart surgery (487KB)
Information to help you when your child is going home after his or her heart surgery at Royal Brompton Hospital.

Your child's difficult asthma assessment (2.46MB)
This leaflet gives you general information about your child's difficult asthma assessment.

Your child's cystic fibrosis clinic (81KB)
Royal Brompton Hospital - What to expect if your child is coming in to our clinic.

Your child's sleep study - Royal Brompton Hospital (922KB)
This leaflet gives you general information on your child's sleep study.

Your child's videofluoroscopy (103KB)
What to expect from this investigation.

Your pre-operative skin wash (335KB)
This leaflet gives you general information about your child's pre-operative skin wash.

 

Coronary calcification scan (41KB)
What to expect if you are undergoing this scan.

Having a cardiac CT scan (497KB)
This leaflet gives general information about having a cardiac CT scan.

Having a CT coronary angiography scan (497KB)
This leaflet provides general information about your CT coronary angiography scan.

Having a CT guided needle lung biopsy (596KB)
This leaflet gives general information about a CT guided needle lung biopsy.

Having a CT scan (321KB)
This leaflet gives you general information about your CT scan.

SPECT-CT scan - Harefield Hospital (57KB)
This leaflet gives information about what a SPECT-CT scan is and what happens when you have your appointment.

Your cardiovascular magnetic resonance (CMR) scan (351KB)
This leaflet provides information about your cardiovascular magnetic resonance (CMR) scan.

Your child's videofluoroscopy (103KB)
What to expect from this investigation.

Your nuclear medicine bone scan - Harefield Hospital (508KB)
This leaflet provides information about your nuclear medicine bone scan.

Your nuclear medicine DMSA medicine scan (40KB)
Harefield Hospital - why and how we perform this scan.

Your nuclear medicine DMSA kidney scan - Harefield Hospital (121KB)
This information sheet gives you details about your appointment for a kidney scan.

Your nuclear medicine DTPA nebuliser scan (38KB)
Harefield Hospital - why and how we perform this scan.

Your nuclear medicine gallium scan (41KB)
Harefield Hospital - why and how we perform this scan. 

Your nuclear medicine gallium scan (43KB)
Royal Brompton Hospital - What to expect if you are coming in for this scan.

Your nuclear medicine glomerular filtration rate (GFR)/EDTA test (90KB)
This leaflet is a general guide to your GFR / EDTA test.

Your nuclear medicine HMPAO white cell scan (40KB)
Harefield Hospital - why and how we perform this scan. 

Your nuclear medicine indium white cell scan (40KB)
Harefield Hospital - why and how we perform this scan.

Your nuclear medicine lung permeability scan (45KB)
Royal Brompton Hospital - What to expect if you are coming in for this scan.

Your nuclear medicine lung scan (45KB)
Royal Brompton Hospital - What to expect if you are coming in for this scan.

Your nuclear medicine lung VQ scan (40KB)
Harefield Hospital - Why and how we perform this scan.

Your nuclear medicine MAG3 renogram - Harefield Hospital (60KB)
This leaflet gives you information about your nuclear medicine MAG3 renogram scan.

Your nuclear medicine mibg scan (781KB)
This leaflet is a general guide to your mibg scan and does not replace the information we give you in person.

Your nuclear medicine MIGM scan (40KB)
Harefield Hospital - Why and how we perform this scan.

Your nuclear medicine MUGA heart scan (38KB)
Harefield Hospital - Why and how we perform this scan.

Your nuclear medicine myocardial perfusion scan - Harefield Hospital (395KB)
This leaflet gives you information on your nuclear medicine myocardial perfusion scan. This scan shows how well your heart muscle is being supplied with blood.

Your nuclear medicine myocardial perfusion scan - Royal Brompton Hospital (467KB)
This leaflet gives you information on your nuclear medicine myocardial perfusion scan. This scan shows how well your heart muscle is being supplied with blood.

Your nuclear medicine thyroid scan - Harefield Hospital (153KB)
This information sheet gives you details about your appointment for a thyroid scan.

Your nuclear medicine myocardial perfusion scan - Harefield Hospital (395KB)
This leaflet gives you information on your nuclear medicine myocardial perfusion scan. This scan shows how well your heart muscle is being supplied with blood.

Your nuclear medicine myocardial perfusion scan - Royal Brompton Hospital (467KB)
This leaflet gives you information on your nuclear medicine myocardial perfusion scan. This scan shows how well your heart muscle is being supplied with blood.

Your nuclear medicine scan (40KB)
Harefield Hospital - The basic principles of a nuclear scan.

Your nuclear medicine sentinel node scan (46KB)
Royal Brompton Hospital - What to expect if you are coming in for this scan.

Your nuclear medicine thallium scan (39KB)
Royal Brompton Hospital - What to expect if you are coming in for this scan. 

Your nuclear medicine thyroid scan (39KB)
Harefield Hospital - Why and how we perform this scan.

Your nuclear medicine thyroid scan - Harefield Hospital (153KB)
This information sheet gives you details about your appointment for a thyroid scan.

Your stress echocardiogram - Royal Brompton Hospital (441KB)
This leaflet gives you general information on your stress echocardiogram (echo). This test helps your doctor understand how your heart copes when it is made to work harder, such as during exercise.