Our Inherited Cardiac Conditions service provides care for patients with heart conditions or suspected heart conditions that can be passed on through families. It operates at both Royal Brompton Hospital and Harefield Hospital as one service.
We offer a comprehensive range of diagnostic services and multi-disciplinary management, from before birth right through to adult care. This includes family screening programmes and genetic testing.
Our service covers:
- Cardiomyopathies
- Inherited arrhythmias (abnormal heart rhythms)
- Aortopathy
- other genetic conditions and syndromes that affect cardiovascular function
Our consultants
Cardiomyopathy (adults)
- Dr John Baksi
- Dr Sabiha Gati
- Dr Brian Halliday
- Dr Zohya Khalique
- Dr Amrit Lota
- Dr Antonis Pantazis (clinical lead)
- Professor Sanjay Prasad
- Dr Upasana Tayal
Cardiomyopathy (children)
- Professor Piers Daubeney
- Dr Andres Rico-Armada
- Dr Maraisa Spada
Inherited Arrhythmia (adults and children)
- Dr Jan Till
- Professor James Ware
- Dr Leonie Wong
Aortopathy (adults)
- Professor Christoph Nienaber
Aortopathy (children)
- Dr Nitha Naqvi
Consultant clinical geneticists
- Dr Tessa Homfray
- Dr Matina Prapa
Genetic counsellors
- Emma O’Malley
- Ellie Quinn
- Tahni-Ann Wilson
ICC nurse specialists (adult):
- Emma Ashby
- Bethan Cowley
- Mary-Beth Flaherty
- Rachel Mackay
- Fortunate Mamombe
- Lucy Martin
- Hannah Piper
ICC nurse specialists (children):
- Lauren Atkins
- Lucy Barrington
- Jess Capon
- Sami Collins
- Lucy Mills
- Rachana Kalathiparambil Ramakrishnan
- Chloe Sutton
Appointments
We offer in-person, telephone, and video appointments.
How to get an appointment
You or your child can be referred to our service by your GP, cardiologist or local paediatrician if you or your child have:
- a confirmed or suspected inherited cardiac condition
- a family history of an inherited heart condition
- had a death in the family due to sudden cardiac arrest (including sudden infant death syndrome) or an inherited cardiac condition
Changing your appointment
If you or your child are unable to attend an appointment, please let us know as soon as possible. This means that we can offer the appointment to another patient.
If you would like to change the first appointment with us, please contact us.
If you would like to change a follow-up appointment, please contact the outpatients department.
If you or your child miss your appointment and do not let us know, you may be discharged back to your referring doctor.
Before your first appointment
You may be invited to have some tests before your first appointment at either the Royal Brompton Hospital or Harefield Hospital. Some tests can only be carried out at specific hospitals, but otherwise we try and arrange them at the hospital which is most convenient for the patient.
As part of the assessment, we try and gather as much information as possible about your family’s history of cardiac conditions. We may also send you a questionnaire to complete before the first appointment.
You will receive an appointment letter confirming your or your child’s appointment details such as the date, time and location.
You can also use the MyChart patient app to view appointment information and get reminders of upcoming appointments. If you do not have the MyChart patient app, you will receive appointment reminders via your preferred means of communication.
During your appointment
Your or your child’s appointment may be an in-person, a telephone, or a video consultation. Appointments take place with a cardiologist or a clinical nurse specialist. We may also arrange an appointment with a genetic counsellor.
If the appointment is for your child, they must be present at the appointment, whether this is in-person, video or telephone.
For in-person appointments, please arrive 5-10 minutes before your appointment time.
If you have a video appointment, joining instructions will be sent to you before the appointment. If you are not able to have a video appointment, please contact us to make alternative arrangements.
More information about appointments can be found on our appointments page.
After your appointment
We’ll arrange any follow-up you or your child may need.
Following your consultation, a written summary of your consultation called a ‘clinic letter’ will be sent to your GP. You will also receive a copy of the clinic letter.
You can use the patient MyChart app to view clinic letters and test results. Please note that test results should always be interpreted by a healthcare professional.
Contact
If you have any general questions about referrals or an appointment, contact the inherited cardiac conditions admin team:
Phone: 0207 352 8121, extension: 88731
Email: gstt.icc@nhs.net
If you are a patient and have any clinical concerns, contact the inherited cardiac conditions, clinical nurse specialist team:
Phone: 0330 128 8823 (adult patient queries) or 0330 128 8121 ext: 82205 (children patient queries)
Email: gstt.hlcc.iccnurses@nhs.net
If you need to speak to the genetic counselling team:
Phone: 0330 128 8822
Email: gstt.iccgcs@nhs.net
Please note we are not an emergency service.
Information for referrers
GP referrals should be submitted via the NHS e-Referral service (e-RS). Referrals submitted through the e-RS should include the following clinical information:
• Priority: Urgent/Routine
• Location: Royal Brompton Hospital (RJ182)
• Service name: Inherited Cardiac Conditions – referral assessment – Royal Brompton Hospital - RJ1
For referrals outside of primary care, please email us at gstt.icc@nhs.net. Our team will review the referral and determine the most appropriate hospital site and clinic for the patient.