Important: Inpatient paediatric services have moved to Evelina London Children’s Hospital
Children’s heart and lung inpatient services moved to Evelina London Children’s Hospital in May 2026. Find out more about the changes we are making to children’s heart and lung services
We are one of only three diagnostic and four management centres for primary ciliary dyskinesia (PCD) in the UK.
Our PCD team has an international reputation in the diagnosis and treatment of PCD.
We have the largest and busiest PCD specialist service in Europe with more than 300 child and adult patients under our care. Find out more about our primary ciliary dyskinesia service for adults.
Our service offers 18 consultant-led annual assessment clinics and 12 multidisciplinary follow-up clinics each year as well as an outreach programme of clinics and home and school visits.
Any patient suspected to have primary ciliary dyskinesia (PCD) can be referred to Royal Brompton Hospital, one of only three diagnostic centres in the UK.
Diagnostic service
The PCD diagnostic service at Royal Brompton Hospital has been nationally funded since 2006 and sees around 400 patients each year.
The National PCD service for diagnostics and management of the disease now provides specialist care for over 1,000 patients with PCD, free at the point of access. Any patient suspected of having PCD can be referred to Royal Brompton, which is one of three diagnostic centres; the other two are Southampton General Hospital and Leicester Royal Infirmary. Around 100 patients per year receive a positive diagnosis.
The National PCD management service has been established since 2012 and its success has led to a successful bid for a nationally commissioned service in three other centres across England, at the above three diagnostic centres, as well as a fourth centre in Leeds and Bradford.
Patients are referred following a positive diagnosis, or where a pre-existing diagnosis has been confirmed. Every patient has annual assessment, and follow up in one of the centres, or at their local hospital where a visiting MDT outreach service exists.
Referrals
Any patient can be referred to the national service, which is free to all providers. Patients may also self-refer, although we encourage referral via your GP or local consultant to allow shared care from the outset. We also receive referrals direct from other specialists in respiratory medicine, ENT, cardiology, neonates, fertility clinics and clinical genetics.
Find out more about making a referral to our services.
Education
The team works with local hospitals and schools to provide them with an understanding of the condition and how to manage it. Each team also has an outreach service that includes home and school visits to help support families with the burden of treatment needed at home and at school.
PCD team
Due to the complexity of PCD, a multidisciplinary team approach is vital.
The teams consist of the following members:
Diagnostic team:
- Dr Claire Hogg, consultant
- Dr Amelia Shoemark, senior clinical scientist
- Dr Melissa Dixon, EM scientist
- Sarah Ollossen, respiratory physiologist
- Kate Kilpin, respiratory physiologist
Management team:
- Dr Siobhan Carr and Dr Claire Hogg, consultants
- Miss Gemma Marsh, physiotherapist
- Miss Abby Carlton, clinical nurse specialist
- Miss Emily Frost, respiratory physiologist
- Mr Michael Leshan, PCD secretary