Cystic fibrosis (adults)

The Royal Brompton Hospital Adult Cystic Fibrosis Centre is one of the largest centres in Europe and treats approximately 600 adults from the age of 17 years. We aim to provide high quality, evidence-based healthcare in a supportive and caring environment.

The team

The cystic fibrosis multidisciplinary team (CF-MDT) is made up of consultants, research fellows, clinical nurse specialists, specialist physiotherapists, dietitians, psychologists and pharmacists. The CF administration team includes a registry co-ordinator, administrator and secretaries.

Clinic

There are three CF virtual clinics a week on Monday, Tuesday and Friday mornings. Each virtual clinic is staffed by at least two consultants, plus junior doctors, research fellows and respiratory registrars. Additionally, there are monthly virtual CF-related diabetes and gastroenterology clinics in partnership with colleagues from Chelsea and Westminster Hospital. Adults with CF who are unwell and need to be reviewed urgently can be booked into the day-case unit.

Day case review

There is a day case ward available for individuals to be seen if they are unwell and need to start home intravenous antibiotics, for investigations, or to see members of the CF-MDT for individual consultations.

Inpatients

All patients are admitted to single rooms with an en-suite bath or shower. For younger people with CF, links with the Chelsea Community Hospital School mean that teachers are available to support studies during an admission.  

Research

The Royal Brompton Hospital paediatric and adult CF centres work in partnership in research, quality improvement and service delivery. As a partnership, they are a designated European Cystic Fibrosis Society Clinical Trials Network Site (ECFS CTN), which provides opportunities to lead and participate in trials of new treatments across Europe. The Partnership is also part of the Cystic Fibrosis Trust Clinical Trials Accelerator Platform (CTAP) – London Network.

Find out more about the CTN and the CTAP.

National Cystic Fibrosis Registry

Both the adult and paediatric CF centres enter annual data onto the UK CF Registry following individual consent for anonymous data to be recorded. Find out more

New patients

If you would like to be referred to this centre, we will need a referral letter from either your GP or, if you currently attend a CF centre, your consultant. Public transport and distance mean that many of our referrals come from people living in the North West London region.

Useful contacts

For all enquiries please contact Patricia Granahan: p.granahan@rbht.nhs.uk

Share