Inherited cardiac conditions

Lead nurse

Catherine Renwick

Telephone: 020 7352 8121, ext 82205

Paediatric clinical nurse specialist

Inherited cardiac conditions nurse

Telephone: 020 7352 8121, ext 82205

Adult clinical nurse specialists 

Telephone: 020 7351 8823

The inherited cardiac conditions (ICC) service is growing rapidly. It is the role of the clinical nurse specialists to take care of patients and their families who suffer, or who are at risk of, inherited cardiac conditions, including structural heart diseases (cardiomyopathies) and inherited arrhythmias (ion channelopathies).

The team comprises adult and paediatric trained nurse specialists, providing support, advice and education from childhood through to adulthood.

The team is involved in weekly cardiomyopathy and ion channelopathy clinics, and support is extended to inpatients undergoing diagnostic evaluation or therapies. As part of the referral process, the CNS team gathers test results and family medical histories for clinic visits and acts as a specialist resource and referrer to GPs, cardiologists and other healthcare professionals.

In addition to helping patients and their families through the investigative and diagnostic screening process, the team also assist with the management and relief of symptoms, gauge risk of sudden cardiac death (SCD) and provide much needed advice and education on lifestyle adjustment, including offering further support to parents, schools, employers and other community-based organisations.

A large proportion of our work involves genetic counselling. This scientific-based form of counselling provides psychological support throughout patients lifelong care. It also helps to demonstrate and explain risk through recognition of family inheritance patterns and genetic information and triggers clinical screening for other family members that are identified as being at risk.

A key part of the CNS role within the service is ensuring the multidisciplinary team works efficiently and with a family-centred focus.

We also engage in research to learn more about ICCs and how we can better help patients.