Online patient event: exploring pulmonary fibrosis

Please note: this event has ended.

Date: Thursday 11 November 2021

Time: 10am – 3.30pm GMT 

Location: Online via Zoom

Organisers: Dr Peter George and Prof Sujal Desai, in partnership with Action for Pulmonary Fibrosis.

Royal Brompton and Harefield hospitals and Action for Pulmonary Fibrosis invite patients with pulmonary fibrosis, their carers and healthcare professionals to join a free virtual event, where respiratory experts from our interstitial lung disease unit, and patients and carers familiar with pulmonary fibrosis, will explore a range of topics relating to the condition. 

The live event will be split into four sessions, each covering topics of interest and concluding with a question and answers session where speakers will aim to answer questions from the audience. Attendees are welcome to join for the whole day or for individual sessions, which include:

  • Different forms of pulmonary fibrosis and how they are diagnosed
  • Treatment for pulmonary fibrosis
  • Quality of life and pulmonary fibrosis
  • The future and research

Full details of the event programme and the line-up of speakers can be found at the bottom of this page.

How to register

This event has ended.

What is Action for Pulmonary Fibrosis?

Action for Pulmonary Fibrosis is a patient-led charity that supports patients and families to raise awareness of pulmonary fibrosis, and funds research to find a cure for pulmonary fibrosis and improve access to the highest standard of care for those affected by the condition.

For more information about Action for Pulmonary Fibrosis, please click here.

What if I cannot attend the event?

A recording will be made available on this page shortly after the event.

10am – 10.10am

Introduction and welcome by Dr Peter George and Professor Sujal Desai


Session 1: Different forms of interstitial lung disease (ILD) and how they are diagnosed

10.10am – 11.15am 

Session chair: Professor Sujal Desai


Session 2: Treatment for ILD

11.25am – 12.30pm

Session chair: Dr Alex West

  • Antifibrotic therapy: Dr Felix Chua
  • Immunosuppression for ILD: Dr Elizabeth Renzoni
  • Rare cystic lung disease: Dr Maria Kokosi
  • Advanced therapies; extracorporeal membrane oxygenation (ECMO) and lung transplantation: Dr Nonni Reed
  • Questions and answers

Session 3: Quality of Life and ILD

1pm – 2pm

Session chair: Charlotte Hogben, clinical nurse specialist

  • Peer support and support for carers: Steve Jones, chair of trustees at Action for Pulmunary Fibrosis, and we hear from a patient
  • Topics include: living well, psychological support, nutrition and signposting to palliative care
  • Questions and answers

Session 4: The future and research

2pm – 3.30pm

Session chair: Dr Peter George 

  • Royal Brompton Hospital research strategy: Dr Vasilis Kouranos
  • Home monitoring and PROMS: Dr Marlies Wijsenbeek - the Erasmus MC University Medical Centre in Rotterdam
  • What does CT tell us and why do we do it: Professor Anand Devaraj
  • The role of genetics in diagnosis and management of ILD: Professor Gisli Jenkins
  • Emerging clinical trials and promising approaches: Dr Philip Molyneaux
  • Question and answers

3.30pm

Concluding remarks and close: Dr Peter George, Professor Sujal Desai

  • Dr Felix Chua

Dr Chua graduated in 1995 from the University of London with distinction. He was subsequently awarded a Wellcome Research Training Fellowship to undertake PhD studies investigating experimental lung fibrosis; this work was focused on defining specific biochemical and cellular mechanisms that promote pathological lung scarring.

Dr Chua’s clinical postgraduate training was undertaken at the Hammersmith, Royal Brompton and University College London hospitals.

Dr Chua established an interstitial lung disease clinic at St George’s Hospital in Tooting, London in 2007. He also led its TB Chest service and was care group lead for respiratory medicine from 2011 until 2014 when he joined Royal Brompton Hospital in September of the same year.

  • Professor Sujal Desai

Professor Desai trained in medicine at the Middlesex Hospital Medical School in London, qualifying in 1987. As senior house officer, Professor Desai spent time at Royal Brompton Hospital and, after completing the MRCP (UK), he entered formal radiology training at King’s College Hospital Medical School.  

Professor Desai was awarded the Frank Doyle Medal for achievement in the Part I FRCR examination and the Rohan Williams Medal for the Part II FRCR examination. Following core radiology training Professor Desai undertook research at Royal Brompton Hospital, under the supervision of Professor David Hansell (his predecessor in the post he now holds), being awarded an MD for his thesis on structural-functional correlations in fibrosing lung disease. 

Professor Desai was previously a consultant at King’s College Hospital in London where he worked for 18 years before returning to Royal Brompton Hospital.

  • Professor Anand Devaraj

Professor Anand Devaraj is a thoracic radiologist at Royal Brompton and Harefield hospitals, and Professor of Practice in thoracic radiology at the National Heart and Lung Institute, Imperial College London.

He trained at Guy's and St Thomas' NHS Foundation Trust, graduating in 1998 and trained in radiology at St George's Hospital, London, and completed sub-speciality thoracic imaging training at Royal Brompton Hospital in 2008. During this time Professor Devaraj completed his MD thesis in the imaging of pulmonary hypertension in interstitial lung disease. 

Before his appointment at Royal Brompton Hospital in 2014, Professor Devaraj worked as a thoracic radiologist at Addenbrooke's Hospital in Cambridge and at St George's Hospital, London.

  • Dr Peter George

Dr Peter George qualified at Imperial College School of Medicine in London in 2005, and has trained at the most prestigious centres in London and in 2009 was awarded an Academic Clinical Fellowship in respiratory medicine. 

He secured funding from the Medical Research Council to pursue a higher degree and went on to complete his PhD at Imperial College, London, focusing on the role of the innate immune system in pulmonary vascular inflammation. 

Dr George has trained in interstitial lung disease at both Hammersmith and Royal Brompton Hospitals and spent time in the interstitial lung disease unit at the National Jewish Health Hospital in Denver, Colorado, considered by many to be the leading respiratory hospital in the United States. In November 2019, he was appointed respiratory speciality lead for the National Institute for Health Research (NIHR) North West London Clinical Research Network (CRN), where he will lead the delivery of and improve patient access to research in respiratory medicine. 

  • Ms Charlotte Hogben 

Charlotte qualified as a nurse in 2007 and after initially working in Accident and Emergency at St Georges Hospital she joined the Royal Brompton in 2009 where she was first introduced to looking after patients with interstitial lung disease. Charlotte worked on Lind Ward at the Royal Brompton for several years during which she completed an MSc in cardiorespiratory nursing and then in 2015 the opportunity came for her to join the ILD team as a clinical nurse specialist. The nursing team has now expanded to allow more support to patients. 

  • Professor Gisli Jenkins 

Professor Gisli Jenkins completed his medical training at University of Southampton before undertaking postgraduate training in respiratory medicine in London.

During this time he undertook basic scientific training funded by an ARC Fellowship and obtained a PhD in Biochemistry from University College London before doing post-doctoral studies at University of California at San Francisco funded by an ARC Clinician Scientist Fellowship.

in 2005 he returned to the UK as Clinical Senior Lecturer at the University of Nottingham where he established the Academic Interstitial Lung Disease Unit. He was the pulmonary fibrosis work package lead for the MRC Nottingham Molecular Pathology Node, and the Nottingham Biomedical Research Centre.

He is currently the Familial Pulmonary Fibrosis lead for the Genomics England Clinical Interpretation Partnership in Respiratory Medicine and is the Post Hospitalisation (PHOSP)-COVID study Fibrosis Working Group lead and leads the UK Interstitial Lung Disease consortium.

In 2021 he moved to Imperial College, London to lead the Margaret Turner Warwick Centre for Fibrosing Lung Diseases at the National Heart and Lung Institute.

  • Steve Jones, chair of Trustees, Action for Pulmonary Fibrosis

Steve was diagnosed with idiopathic pulmonary fibrosis in 2008 and lived with the disease for eight years before receiving a single lung transplant in March 2016.

Now retired, Steve is a member of the Papworth Hospital Pulmonary Fibrosis Support Group. He is also a Parish Councillor.

He serves on the board of the European IPF Federation (EU-IPFF) and the council of the European Lung Foundation. He believes that international collaboration will bring greater benefits to people affected by pulmonary fibrosis in the UK and beyond.

  • Dr Maria Kokosi

Dr Maria Kokosi is an interstitial lung disease specialist based at the Royal Brompton Hospital and Guy’s & St Thomas’. Her main area of expertise are rare lung diseases such as LAM, Langerhan’s Histiocytosis and Pulmonary Alveolar Proteinosis. She is the Lead Clinician for the National Rare Cystic Lung Disease Service.

  • Dr Vasilis Kouranos

Dr Vasilis Kouranos completed his training in respiratory medicine in 2013 at the General Hospital of Thoracic Diseases, the largest university hospital in Athens.

He completed his masters degree in Thoracic Oncology in 2011 after a publication about antibiotic prophylaxis of chemotherapy-induced neutropenic lung cancer patients.

Dr Kouranos' PhD at the University of Athens focused on screening CMR patients with biopsy-proven sarcoidosis. He was awarded a research scholarship grant for the study and his PhD was awarded in 2017 after his work was published in a high-impact journal which influences current practice in the field.

After his PhD, Dr Kouranos joined the Royal Brompton hospital as a clinical research fellow to Professor Athol Wells and in 2016 he was offered the role of senior clinical fellow and in parallel, acting consultant in the interstitial lung disease department.

  • Dr Philip Molyneaux

Dr Philip Molyneaux qualified at Guy's, King's and St Thomas' School of Medicine in 2004, where he completed an intercalated BSc. in Molecular Genetics. He undertook his senior house officer training at Guy’s and St Thomas’ followed by a National Institute for Health Research (NIHR) Academic Clinical Fellow position in respiratory medicine at Imperial College, London.

He spent the next two years training at St Mary’s Hospital and working with Professors Cookson, Moffatt and Johnston studying the respiratory microbiome in chronic obstructive pulmonary disease (COPD). He subsequently completed a PhD on the role of infection in the pathogenesis of Idiopathic Pulmonary Fibrosis (IPF) at Imperial College.

  • Professor Andrew Nicholson

Professor Andrew Nicholson is a consultant histopathologist specialising in thoracic pathology, and an honorary professor of respiratory pathology at the National Heart and Lung Institute, Imperial College London.

He has particular expertise in thoracic pathology (lung and mediastinum) and conducts research into lung cancer and interstitial lung disease in particular.

He reports between 200 and 300 referrals from clinicians and other pathologists, nationally and internationally, each year.

  • Dr Elizabeth Renzoni

Dr Elizabeth Renzoni obtained her medical degree and completed her training in respiratory medicine at the University of Siena, Italy, and subsequently specialised in interstitial lung diseases (ILD) in the regional ILD specialist centre in Siena.

  • Professor Athol Wells

Professor Athol Wells trained at Green Lane Hospital in Auckland, New Zealand. He then came to Royal Brompton Hospital in 1989 for his post-graduate studies.

  • Dr Alex West

Dr Alex West is a consultant respiratory physician at Guy’s and St Thomas’. He is the clinical lead for the specialist interstitial lung disease department. This is a large tertiary centre combining Guy’s, St Thomas’ and Kings with a large clinical and research team which is expanding. 

  • Dr Marlies Wijsenbeek

Marlies Wijsenbeek is chair of the multidisciplinary Centre of Interstitial Lung Diseases and Sarcoidosis; a national expert centre and member of the European Reference Network based at the Erasmus University Medical Centre, Netherlands. Her research interests include patient-centred outcome measures in ILDS, e-health, and new therapies in pulmonary fibrosis and sarcoidosis. She is chair of the ERS Group 12.01 (idiopathic interstitial lung diseases ), is a member of the scientific advisory boards of a number of different patient associations including EU-IPFF, and is associate editor of the European Respiratory Journal and Respiratory Research.

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