Airway clearance with daily physiotherapy, nebulisers and other techniques is the key to preventing the lung disease progressing.
Antibiotics are used to treat infections, sometimes over long periods of time. On occasion, patients come into hospital for intravenous antibiotics, intense physiotherapy and bronchoscopy if physiotherapy and infection management is not leading to improved symptoms and lung function.
Primary ciliary dyskinesia is an inherited genetic disorder of the structure and/or function of the cilia, which are the tiny microscopic moving structures lining the airways, ears, sinuses and som
Due to the complexity of PCD, a multidisciplinary team approach is vital.
The teams consist of the following members:
Dr Claire Hogg, consultant
Dr Amelia Shoemark, senior clinical scientist
Dr Melissa Dixon, EM scientist
Sarah Ollossen, respiratory physiologist
Kate Kilpin, respiratory physiologist
Dr Siobhan Carr and Dr Claire Hogg, consultants
Miss Gemma Marsh, physiotherapist
Miss Abby Carlton, clinical nurse specialist
Miss Emily Frost, respiratory physiologist
Mr Michael Leshan, PCD secretary