PCD lung disease is managed in a very similar way to any form of bronchiectasis, including cystic fibrosis.

Airway clearance with daily physiotherapy, nebulisers and other techniques is the key to preventing the lung disease progressing. 

Antibiotics are used to treat infections, sometimes over long periods of time. On occasion, patients come into hospital for intravenous antibiotics, intense physiotherapy and bronchoscopy if physiotherapy and infection management is not leading to improved symptoms and lung function. 

Primary ciliary dyskinesia is an inherited genetic disorder of the structure and/or function of the cilia, which are the tiny microscopic moving structures lining the airways, ears, sinuses and som

Due to the complexity of PCD, a multidisciplinary team approach is vital. 

The teams consist of the following members:
Diagnostic team:
Dr Claire Hogg, consultant
Dr Amelia Shoemark, senior clinical scientist
Dr Melissa Dixon, EM scientist
Sarah Ollossen, respiratory physiologist
Kate Kilpin, respiratory physiologist

Management team:
Dr Siobhan Carr and Dr Claire Hogg, consultants
Miss Gemma Marsh, physiotherapist
Miss Abby Carlton, clinical nurse specialist
Miss Emily Frost, respiratory physiologist
Mr Michael Leshan, PCD secretary


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