Cystic fibrosis (CF) is a genetic disease affecting over 10,500 children and adults in the UK. Thick, sticky mucus clogs up in the lungs, digestive system and other organs in the body causing problems that need treatment. Unfortunately, CF remains life limiting, however early diagnosis and treatment in a specialist CF centre helps in preserving health and a good quality of life. Although individuals with CF must maintain a life-long, daily and complex treatment regimen, they can continue with school, work and social lives with friends and family.

We are one of the largest CF centres in Europe with nearly 600 adults. As well as an active clinical service, we both lead and take part in many national and international research studies. We aim for high-quality, evidence-based healthcare in a supportive and caring atmosphere.

The multidisciplinary team

The specialist multidisciplinary CF team (CF-MDT) is made up of many different professionals including consultants, clinical nurse specialists (CNSs), physiotherapists, dietitians, psychologists, pharmacists, researchers, secretaries and administrators. The CF-MDT do a daily ward round, review day-cases and hold several different virtual clinics throughout the week. The CNSs are on the end of the phone and email during the week to help with all queries, the physios provide clinic reviews, airway clearance reviews and exercise sessions – all virtually, and the dietitians support CF related diabetes, enteral feeding issues as well as clinic reviews – again all virtually.

The adult CF service has close links with teams across the Trust as well as specialists from other hospitals including: 

  • Obstetrics/gynaecology
  • Ear nose and throat
  • Rheumatology
  • Renal
  • Endocrinology
  • Cardiothoracic surgery
  • Radiologists
  • Microbiologists
  • Haematologists
  • Gastroenterologists
  • Lung transplant team
  • Liver transplant team
  • Palliative care team
  • Pain management team
  • School team

Clinics

We offer three CF virtual clinics a week on Monday, Tuesday and Friday mornings. Additionally, we offer monthly virtual CF-related diabetes and gastroenterology clinics in partnership with colleagues from Chelsea and Westminster Hospital.

Adults with CF who are unwell and need to be reviewed can be booked into the day-case unit by contacting the CF nurse specialists on 020 7351 8065. They will be able to organise an appointment. If you feel unwell overnight or at a weekend and feel unable to wait until the next working day, you should phone the main hospital switchboard on 020 7352 8121 and ask to talk to the on-call respiratory registrar for adults.

All clinics are closed during UK bank holidays (England and Wales).

Useful information

The Cystic Fibrosis Trust: www.cysticfibrosis.org.uk

Cystic Fibrosis Europe: www.cf-europe.eu

Cystic Fibrosis Foundation (USA): www.cff.org

National Institute for Health and Care Excellence (NICE): https://www.nice.org.uk/guidance/ng78 


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