NHS England has designated Royal Brompton Hospital as the leading centre for a new national rare disease network, in collaboration with Queen’s Medical Centre, Nottingham. The two centres have developed world-leading expertise in the management of patients with cystic lung diseases.
Royal Brompton Hospital has a dedicated cystic lung disease service, led by Dr Maria Kokosi, that treats patients with rare lung disorders characterised by multiple cysts, such as lymphangioleiomyomatosis (LAM), pulmonary Langerhans’ cell histiocytosis (PLCH) and Birt-Hogg-Dube syndrome. The service is part of the hospital’s interstitial lung disease (ILD) unit, which is the largest unit of its kind in Europe with more than 4,000 patients. Queen’s Medical Centre hosts the NHS England commissioned National Centre for LAM led by Professor Simon Johnson.
Dr Peter George, lead for the ILD unit, said: “We are very grateful to NHS England for giving us the opportunity to develop and lead a new national cystic lung disease network with the goal of transforming the care for patients throughout the UK who suffer with these rare conditions.”
Dr Maria Kokosi, lead clinician for the service, said: “This is an exciting opportunity to improve the standard of care for our patients and to further develop expertise and research in the field of cystic lung diseases, not only at a national but international level as well.”