An idiopathic pulmonary fibrosis (IPF) research day was held at Royal Brompton Hospital on 24 September for patients taking part in IPF research trials at the Trust.
A multidisciplinary team of IPF experts, led by Dr Toby Maher, consultant respiratory physician, welcomed attendees to the event. Presentation topics included current trials, results from previous trials, and support services available at the Trust. Staff were joined by representatives from the British Lung Foundation (BLF), who provided information on the condition, and participants were also treated to a Singing for Breathing session.
IPF is a type of interstitial lung disease (ILD) that affects the tissue and space around the air sacs in the lungs. The cause is unknown and there is no curative treatment. The ILD unit at Royal Brompton Hospital is the largest of its kind in Europe, and is the only unit in the UK exclusively dedicated to the management of patients with fibrosing lung disease.
Over 40 patients and their families attended, and when asked what they had enjoyed about the day, comments included: “The opportunity to meet other IPF sufferers and for my wife, who is my carer, to meet other carers and the research team” and “It is reassuring to know that research is forging ahead”.
Lyn Bingham, senior research nurse in ILD and one of the presenters, said: “It was a fantastic event and a great opportunity to show those attending how their participation in research trials is helping in the diagnosis and treatment of IPF. It also gave patients and their families the chance to talk to other people who are living with the condition and to share their experiences.”
Back to BRU news