The Trust is dedicated to involving patients and the public in the design, execution and dissemination of our research and in raising public awareness and interest in our work through a range of education and media activities.
Public involvement and engagement (PIE) focuses on people with a 'lay' interest in lung and/or heart research and this includes:
- People living with related health conditions, their carers and relatives
- Patient representative organisations
- Patient groups
- People who have taken part in clinical research or are currently participating
- Members of the public
- Schools and colleges
- Science organisations and institutions working for the public
If you are interested in finding out more about getting involved please email firstname.lastname@example.org
Self-management education programme for CF-related diabetes -
Patient representatives needed
Do you have an interest in cystic fibrosis or self-management programmes?
Would you like to be an active partner in a study looking to develop a self-management education programme for people with cystic fibrosis-related diabetes?
Are you willing to attend meetings (in person or remotely) to help develop the programme?
If yes, we would like you to join our stakeholder group and help us shape the research programme. You do not need to have CF to take part and you will be reimbursed for any travel costs.
To find out more about this opportunity please email us or call 020 7351 8940.
For more information on how patient information may be used for research, visit the Health Research Authority website