[Skip to content]

Royal Brompton & Harefield NHS Foundation Trust
For healthcare professionals
Search our Site

Paediatrics

Children's long-term ventilation service

Hospital to Home logo

The children's long-term ventilation (LTV) service at Royal Brompton Hospital is a multidisciplinary team with expertise in paediatric intensive care, advanced respiratory and ventilatory management, and complex discharge planning.


The LTV team comprises consultants, clinical nurse specialists, occupational therapists and physiotherapists.

 

They work with a network of neonatal and paediatric intensive care units, high dependency units, paediatric wards, local hospitals, children's centres and hospices throughout London and the South East region.


Hospital to Home referral process: Children’s Long Term Ventilation service

 

Although we are currently reviewing our web-based referral service, Royal Brompton’s Hospital to Home service for Children’s Long Term Ventilation is still operational and taking new referrals. The service provides

 

  • Clinical support from nurse, paediatric LTV consultant and AHPs
  • Allocation of regional key worker for all LTV inpatients in London
  • Welfare advice service and help with grant applications
  • Occupational Therapy specialist advise for LTV discharge to both hospital and community teams
  • Data management to comply with NHSE ‘fit for discharge’ reporting
  • Staff training and development for LTV
  • Bespoke parental and carer training
  • Education events

 

During this transition phase please contact our clinical team directly on hospitaltohomesupport@rbht.nhs.uk or call direct dial 020 7352 8121 ext 84411

 

The log in portal became unavailable to new referrals on 21st Sept 2018. For patient identifiable or clinical data, please use an NHS.net account and send to

rbh-tr.childrenslongtermventilation@nhs.net

 

NHS England requires the use of a single source of data and recommends that providers continue to use the Royal Brompton Hospital to Home service to complete contractual requirements for discharge tracking for children on long term ventilation. 


If you are the main contact for your organisation, you should already have received email communications on processes to submit this information. If you have not received instructions, please contact hospitaltohomesupport@rbht.nhs.uk with your role, organisation and contact number.

 

We apologise for any inconvenience this may cause and thank you for your understanding.

 

For any queries about previous data that may have been held on the portal, please contact m.wicking@rbht.nhs.uk with your name, designation and NHS organisation. 


Child ventilator - photo courtesy of Lily Sawyer
photo courtesy of Lily Sawyer

Being at home is better

In the past, some children may not have been able to go home safely. However, medical advances mean that these children can now survive intensive care and become well enough to go home.

 

Some remain dependent on technology, such as a breathing machine, to keep them alive.

 

We know that being at home is better for a child's development and it is the aim of the children's LTV service to co-ordinate the discharge pathway to provide a safe transition to home as soon as possible.

 

We work throughout the region providing local centres (including premature baby units and children's hospices), professionals and families with clinical support, education and training during the journey from hospital to home.


Read about Royal Brompton Hospital's Hospital to Home service

Getting baby home
Getting baby home safely is the first priority for families with children on long term ventilation. Photo courtesy of Lily Sawyer.

Watch our video
"This is a very, very impressive initiative and I think it is important for others in the NHS to hear more about it. I was particularly interested to see that a project developed in one specialist trust, which offers patients and their families a much-improved service, also benefits so many other organisations in the health and social care systems."

 

Earl Howe, Parliamentary Under Secretary of State (Department of Health)