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Appendix XII - CF Trust consensus documents, booklets and factsheets

 

These are available on the CF Trust website – www.cftrust.org.uk/aboutcf/publications/.

 

Current consensus documents

 

Microbiology

            Laboratory Standards for Processing Microbiological Samples from People with Cystic Fibrosis. First edition. September 2010

Antibiotics

            Antibiotic Treatment for Cystic Fibrosis. Third edition. May 2009

 

MRSA

            Methicillin-resistant Staphylococcus aureus (MRSA). April 2008

 

Bones

            Bone Mineralisation in Cystic Fibrosis. February 2007.

(Not to be downloaded without addendum, below).

        Addendum for Bone Mineralisation in Cystic Fibrosis

 

Pseudomonas aeruginosa

            Pseudomonas aeruginosa infection in people with Cystic Fibrosis. Suggestions for Prevention and Infection Control. Second Edition. November 2004

 

Burkholderia cepacia

            The Burkholderia cepacia Complex - Suggestions for Prevention and Infection Control. Second edition. September 2004

 

Diabetes

            Management of Cystic Fibrosis-related Diabetes Mellitus. June 2004

 

Nutrition

            Nutritional Management of Cystic Fibrosis. April 2002

 

Nursing

            National Consensus Standards for the Nursing Management of Cystic Fibrosis. May 2001

 

 

 

Booklets

 

The Facts - An introduction to Cystic Fibrosis

 

Cystic Fibrosis & You - A guide for children

 

Growing up with Cystic Fibrosis - A guide for teenagers

 

My Mummy has CF

 

Genetics

 

Health Care Workers with Cystic Fibrosis

 

Dying, death and bereavement (not available online - please contact the CF Trust to order)

 

External publications (not published by the CF Trust)

 

Cystic Fibrosis and Relationships

 

Fact sheets


A Patient's Charter: The care of patients with Cystic Fibrosis

 

Cascade screening

 

Cystic Fibrosis Trust Support Services

 

Cystic Fibrosis and bone health

 

Cystic Fibrosis-related diabetes

 

Employment

 

Exercise

 

Financial help

 

Finding out about Cystic Fibrosis

 

Higher education

 

Home intravenous therapy (Home IVs)

 

Housing

 

Melioidosis and travel to tropical countries

 

Nebuliser therapy

 

Nutrition: A guide for adults

 

Nutrition: A guide for children and parents

 

Nutrition: A guide for feeding infants

 

Physiotherapy treatment - Airway clearance

 

Physiotherapy treatment - For babies and toddlers

 

Prescription charges (updated April 2010)

 

School and Cystic Fibrosis


Steroid treatment in Cystic Fibrosis

 

The sweat test in Cystic Fibrosis

 

Totally Implantable Intravenous Access Devices (TIVADs) / Ports in Cystic Fibrosis

 

Transition from paediatric to adult care: Guide for young people

 

Transition from paediatric to adult care: Guide for parents

 

Transition from paediatric to adult care: Guide for commissioners and hospital / clinical teams

 

Transplantation

 

Urinary incontinence in Cystic Fibrosis

 

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